Thought you might like to see a video of Ashlyn.
Friday, February 27, 2009
Thursday, February 26, 2009
Thursday Afternoon
Sorry for the delay in posting. The wireless connection is not very good at Sunnyview, so I was not able to get on and post.
Ashlyn has done ok with her transition to Sunnyview. Today she saw Speech Therapy, Occupational Therapy and Physical Therapy. She has about had it with hospitals and people she doesn't know coming up to her and trying to "play". I don't blame her. I know she wants to be home more than anything, but we know this is the best place for her now. As I write this, Todd and Ashlyn are on their way to Albany Med. because her feeding tube got blocked with crushed up meds. The pharmacy instead of sending up her meds. liquid, sent them up pill form. But why you ask did the nurse crush them and try and squeeze them in her little tube. My answer, I don't know. So, hopefully all goes smoothly and they will not be there long.
As for how I am doing. Well, I am a little overwhelmed with all this. I just wish we could skip ahead 6 weeks and everything is fine and Ashlyn is coming home. But I can't and we have to walk through this. It is hard for me to watch her not be happy and mostly sad. It's hard for me to remember how she was and see how she is now. I know that she will not stay as she is now and will only get better from here. She has come so far in just a few weeks. So I know I just to keep looking at all the wonderful things she can do.
Thank you again for helping us out. Your prayers, support have really helped us get through this difficult time with Ashlyn. God Bless.
Ashlyn has done ok with her transition to Sunnyview. Today she saw Speech Therapy, Occupational Therapy and Physical Therapy. She has about had it with hospitals and people she doesn't know coming up to her and trying to "play". I don't blame her. I know she wants to be home more than anything, but we know this is the best place for her now. As I write this, Todd and Ashlyn are on their way to Albany Med. because her feeding tube got blocked with crushed up meds. The pharmacy instead of sending up her meds. liquid, sent them up pill form. But why you ask did the nurse crush them and try and squeeze them in her little tube. My answer, I don't know. So, hopefully all goes smoothly and they will not be there long.
As for how I am doing. Well, I am a little overwhelmed with all this. I just wish we could skip ahead 6 weeks and everything is fine and Ashlyn is coming home. But I can't and we have to walk through this. It is hard for me to watch her not be happy and mostly sad. It's hard for me to remember how she was and see how she is now. I know that she will not stay as she is now and will only get better from here. She has come so far in just a few weeks. So I know I just to keep looking at all the wonderful things she can do.
Thank you again for helping us out. Your prayers, support have really helped us get through this difficult time with Ashlyn. God Bless.
Tuesday, February 24, 2009
Sunnyview here we come!
Tomorrow Ashlyn will be going to Sunnyview Rehab. Center as long as everything looks good thru the night with her G tube. We are so excited that she is on to her next step of recovery. Be praying she does so well, that she won't be there long. We miss having our little girl home with us. Of course we will still keep you up to date on how her stay is there. Have a good night!
Tuesday
Yesterday's surgery went fine. The procedure only took about 45 min. The Dr. said she does have gastroenteritis (inflammation in her stomach and esophagus). She has this probably from throwing up so much, the bleeding she had and stress. They started her on Nexium and another med. that will help with that inflammation. So now we are just waiting for her to tolerate her feeding in the G tube (stomach feeding tube), and then we will be off to rehab. Not much more to report. Have a good day.
Monday, February 23, 2009
Monday
Well, I was hoping to give an update about how Ashlyn did with her surgery today, but she is just going in now (it's 6:30 pm). The Dr. did tell me that maybe she could be at Sunnyview as soon as Wednesday. Please pray we get there soon.
Ashlyn loves to read books. I let her pick them. At first she would just look at the one she wanted. Today she started touching the one she wanted read. She also started shacking her head "no" when she didn't want something. She is doing so good.
I don't know if I will post another update tonight, but I will definitely let you all know how surgery went by tomorrow morning. Have a good night.
Ashlyn loves to read books. I let her pick them. At first she would just look at the one she wanted. Today she started touching the one she wanted read. She also started shacking her head "no" when she didn't want something. She is doing so good.
I don't know if I will post another update tonight, but I will definitely let you all know how surgery went by tomorrow morning. Have a good night.
Sunday, February 22, 2009
Sunday
Ashlyn had a pretty good night last night. She slept good but threw up twice. Boy, I hope this stops soon. Tomorrow she will be having the surgery for the feeding tube in her stomach. We are praying that she will not have it long and she will be eating from her mouth very soon. They also put her on a different blood pressure medicine. As many of you know, she has a heart defect and she is normally on meds. But since this last injury, her blood pressure has been a little high. This can be normal in a head injury. They just want her blood pressure low so her heart does not have to work hard.
This morning I went up the hospital to relieve Todd and on my way up I started feeling nauseous. So I came back home just in case I am coming down with something. As I am typing this I am feeling a little better. But I feel bad for Todd, because now he has to be up there longer without any breaks. He is such a good father and husband. I couldn't have asked for a better man. (Love ya Honey!)
Thanks for checking in. Have a good rest of the weekend!
This morning I went up the hospital to relieve Todd and on my way up I started feeling nauseous. So I came back home just in case I am coming down with something. As I am typing this I am feeling a little better. But I feel bad for Todd, because now he has to be up there longer without any breaks. He is such a good father and husband. I couldn't have asked for a better man. (Love ya Honey!)
Thanks for checking in. Have a good rest of the weekend!
Saturday, February 21, 2009
Saturday
Watching Kung Fu Panda on a lap top.
Going for a walk with Katelyn and Preston
Ashlyn and I having fun with my cell phone.

Ashlyn had a great night. No throwing up and slept wonderful. I ended up spending the night with her. Todd needed a night off. We had a good night together. Playing with my new phone, going for walks in the red wagon and watching Kung Fu Panda. She is doing so good. She knows everything going on around her. But I think she is frustrated that she cannot talk. But I know God is going to bring that all back for her.
"How Great is our God, sing with me, How Great is our God, and all will see how Great is our God!"
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